Monday, July 21, 2008

CJ, Celiac and the Cleveland Clinic- the three C's

Today was the one year follow up appointment for CJ. Last year at this time he was diagnosed with failure to thrive and was wasting away before our eyes. After his admission at the Cleveland Clinic and with the help of the AMAZING doctors there, we discovered that CJ has Celiac Disease. This was the diagnosis we prayed for, given the other options that might have been- G-d Forbid a million times! After one year of going gluten free he is on the growth chart for weight, for the first time in his life. To put it into perspective, he was born at 2 pounds, 2 ounces and at his smallest he was down to 1 pound 9 ounces. It was 26 days before he was back to his birth weight. He has always been small- that is his nature. But at 16 months he was still thinner than his siblings but he weighed 20 pounds. At his worst again July 2007 at 19 months of age, he weighed a scrappy 18 pounds and was regressing in every way. Today and I am proud to report he weighs 27 pounds and is full of energy, and he is excelling beyond our imagination. The kid freakin knocks my socks off!

Today was the day to show the doctors what a difference a year can make. Last year CJ was miserable and so lethargic that it was truly heartbreaking, but now there is no looking back to that boy. I made sure that his visit today would be memorable for the opposite reasons. He dressed like a gentleman in a button down oxford shirt, striped silk tie and blazer with linen slacks.

CJ was styling beyond his two years, and he WOW-ed everyone at the Clinic. Even patients and staff in the halls smiled and commented on how cute and handsome he is- they could not help themselves. If there was an absolute opposite behavior and appearance to last year, this was it. We nailed it. While waiting for Dr. Krishnan to come into the exam room, CJ was busy "working" at the computer station. It was hilarious to see the reaction from the team when they opened the door and saw CJ using the PC and writing orders at the same time.

Thank you to our hero, Kadakkal Radhakrishnan, M.D- as seen in the smiling faces here:

I am grateful beyond blog enteries and thank you notes to the wonderful team in the Cleveland Clinic- they gave me CJ back. The drive home could not have been sweeter. Our boy crashed after a hard day at the office and his sweet face
, suit and tie showed it.

1 comment:

Lynda said...

Thank you so much for making my morning, day & evening with this wonderful news!
Nesconset, NY Mommy to
Alexa, Gianna & Louis Joel
born 28.3 weeks on 5/20/06

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